Thursday , 24 January 2019
Home » Stop Diseases » Dear Gluten Dude: I’m a Sh*tless Celiac. But I Still Have the Disease!
Dear Gluten Dude: I’m a Sh*tless Celiac

Dear Gluten Dude: I’m a Sh*tless Celiac. But I Still Have the Disease!

I’ve been a bad boy. So many emails that I have not responded to or acknowledged. I swear I do read every one of them, but time prevents me from responding at times. So my apologies to those who have reached out and have not heard back from me. I will give myself a gentle spanking on your behalf.

Here’s an email I received that some of you may relate to. Celiac disease has an amazing of amount of symptoms, but the general population, including way too many doctors, only seem to think that if you don’t have bathroom issues, you can’t have celiac disease. Well…this fellow celiac wants to set the record straight. Here’s her email.

Hey Dude- How’s it going? My family and I just celebrated 5 years of Celiac Awesomeness after having the Celiac Tsunami of a summer in 2011 (three out of five diagnosed). Over those 5 years, I have gone through fits and spurts of paying attention to the Celiac community and the news about the disease itself.

I lost my Mom to cancer in February and while it’s obvious that the loss is profound, I am surprised by one of my grieving manifestations. I am royally pissed off that the diagnosis rate is abysmal in this country. Lack of awareness, uneducated physicians, fad diets…..so many reasons but I think I have a reason to add to the list.

My girls and I were labeled as “atypical Celiacs” because we lacked GI symptoms. I believe that we may be the “typical” and that some of the undiagnosed folks are just like us, and suffering with a myriad of the 300 manifestations that Celiac likes to inflict, but sans the sh*ts. Very often my girls and I are faced with scrutiny from within the Celiac community, when we disclose that we lack GI symptoms.

It’s like you have to be able to throw out endless bathroom stories and sonic sh*ts to be accepted into the real Celiac fold. Why do we go to see a pediatric GI once a year when he looks at us like we’re aliens from another planet?

I would love if you could write about some folks with Celiac that resemble our family, in the hopes that the Celiac family would recognize the possibility that we might just be the norm and work towards helping all of those that are suffering from Sh*tless Celiac. (I think that’s our official diagnosis…..soon to be found in medical text books). Gutless Celiac just doesn’t sound good because we’re pretty flipping brave.

I love your blog….you bring me joy, awareness, and insights. Thank you!

I totally get the frustration. Bathroom issues are the least of my symptoms as well. Though I do have periods where John and I spend a lot of quality time together, my celiac manifests itself in a myriad of different symptoms. It was one of the many items we need to keep advocating about in regards to our disease. Celiac ain’t just tummy troubles. It can affect the entire system. Seriously…no shit.

I’d love to hear from others in the community about this. Do you suffer “silently” and if so, how does that affect you from a celiac standpoint?

#NoCureNoChoice

Click Here For Original Source Of The Article

Check Also

FOR THE LOVE OF FOOD: Make family meals a reality, gut bacteria can prevent weight loss, and red meat wins in the context of a healthy diet

FOR THE LOVE OF FOOD: Make family meals a reality, gut bacteria can prevent weight loss, and red meat wins in the context of a healthy diet

Welcome to Friday’s For The Love of Food, Summer Tomato’s weekly link roundup. This week make family meals a reality, gut bacteria can prevent weight loss, and red meat wins in the context of a healthy diet. Next week’s Mindful Meal Challenge will start again on Monday. Sign up now to join us! Too busy to […]

FOR THE LOVE OF FOOD: Foods that help depression and anxiety, how much exercise you need for lifelong youth, and how bad habits impact dad’s swimmers

FOR THE LOVE OF FOOD: Foods that help depression and anxiety, how much exercise you need for lifelong youth, and how bad habits impact dad’s swimmers

Welcome to Friday’s For The Love of Food, Summer Tomato’s weekly link roundup. This week foods that help depression and anxiety, how much exercise you need for lifelong youth, and how bad habits impact dad’s swimmers. Next week’s Mindful Meal Challenge will start again on Monday. Sign up now to join us! Too busy to read […]

FOR THE LOVE OF FOOD: The benefits of eating early, alternative milks lose their status, and the best time to exercise

FOR THE LOVE OF FOOD: The benefits of eating early, alternative milks lose their status, and the best time to exercise

Welcome to Friday’s For The Love of Food, Summer Tomato’s weekly link roundup. This week the benefits of eating early, alternative milks lose their status, and the best time to exercise. Next week’s Mindful Meal Challenge will start again on Monday. Sign up now to join us! Too busy to read them all? Try this awesome free […]

FOR THE LOVE OF FOOD: The road to sustainable seafood, dairy fat gets a pass, and oily fish delays menopause

FOR THE LOVE OF FOOD: The road to sustainable seafood, dairy fat gets a pass, and oily fish delays menopause

Welcome to Friday’s For The Love of Food, Summer Tomato’s weekly link roundup. This week the road to sustainable seafood, dairy fat gets a pass, and oily fish delays menopause. Next week’s Mindful Meal Challenge will start again on Monday. Sign up now to join us! Too busy to read them all? Try this awesome free speed […]

FOR THE LOVE OF FOOD: The health value of friendship, the trouble with the carbohydrate-insulin model, and the sad state of the EPA

FOR THE LOVE OF FOOD: The health value of friendship, the trouble with the carbohydrate-insulin model, and the sad state of the EPA

Welcome to Friday’s For The Love of Food, Summer Tomato’s weekly link roundup. This week the health value of friendship, the trouble with the carbohydrate-insulin model, and the sad state of the EPA. Next week’s Mindful Meal Challenge will start again on Monday. Sign up now to join us! Too busy to read them all? Try […]

Leave a Reply

css.php