Thursday , 20 September 2018
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I Have Celiac Disease. I Will ALWAYS Have Celiac Disease.

I Have Celiac Disease. I Will ALWAYS Have Celiac Disease.

This is not a “SH*T…I have celiac disease and my life sucks” kind of post. But it’s a “Crap…when I have a good stretch, celiac will always remind me it’s there. Always.” kind of post.

And I indeed have had an amazing stretch. Fall was very good to me. I was on the AIP mostly, my stomach felt great, my energy level was dare I say…normal. I was actually planning a blog post titled “Do I Still Have Celiac Disease??”. That’s how good I felt.

But celiac has a way of saying “Yooooo hooooo….I’m over here. Don’t forget about me.” And this week I got pretty slammed. Don’t know how. Don’t know why. Don’t know where. Don’t know when. I don’t know much…do I??

Don’t know much about history
Don’t know much biology
Don’t know much about a science book,
Don’t know much about the french I took.
But I do know that I love you,
And I know that if you love me, too,
What a wonderful world this would be.

Ok…where was I? Right, celiac. It is literally just the nature of the disease. It is a constant unwanted companion. Your guard needs to be up 24/7 and even when you’re ungodly diligent, well…the disease can rear it’s ugly head and knock you on your ass.

I have a bestie in the celiac community (that I’ve never met…yet) and over the years we reach out to each other when one of us is struggling. (Dude note: if you don’t have this kind of person in your life…get one…now.) Yesterday, we had the following conversation:

Me: Sometimes, not too often, but sometimes our disease sucks the ever-living life out of me.

Her: I hear you loud and clear. Did you get glutened or is the disease just being a jerk?

Me: I honestly don’t know. I just left the bank and I couldn’t remember my phone number or social security number. Just crazy.

Her: Oh that’s scary. My memory has been scary bad lately too. One time I was driving a few blocks from my house and I couldn’t remember how to get home.

Me: Unreal.

A few hours pass and she reaches out to me again. (Gotta love the support).

Her: How is your brain now?

Me: I have had four glasses of water and three cups of tea in the last four hours. My brain seems a bit better, but my bladder is ungodly full.

And yet…this morning, I woke up with some clarity. Go figure. I’m seven years in and I still can’t figure out this disease. Just enjoy and cherish the good days, knowing that there will be some bad days ahead. And that, my friends, is celiac disease.

——–

Dedicated to the celiac community:

#NoCureNoChoice

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