Wednesday , 24 April 2019
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The Celiac Landscape is Getting Treacherous…and It’s Our Own Fault

The Celiac Landscape is Getting Treacherous…and It’s Our Own Fault

I believe the earth is round.
I believe dinosaurs existed.
I believe our climate is warming.
I believe the earth orbits around the sun.
I believe the children are our future…teach them well and let them lead the way (a little shout out to Whitney Houston).

My point is…I believe in science. I believe in science to improve our lives now and for generations to come. What I don’t necessary want is for science to come in and mess with my food. ESPECIALLY MY CELIAC-SAFE FOOD.

But that is exactly what’s been happening. Wheat starch is now being used in some of Schar’s products. Gluten-free barley is now a thing. Oats are now being mechanically sorted instead of being grown separately. Gluten-removed beer is very popular.

Are these items safe? Maybe. Possibly. Sometimes.

Would I consume them? Not in a million f*cking years.

Why? Because I have celiac disease and it’s really, really important what I put in, and keep out of, my body.

Are many in the celiac community celebrating it though? Do I have to ask?

Did they celebrate Cheerios? And Dominos? And Chevy’s? And Smashburger? Yep x 4.

It’s so frustrating to me. The companies that are doing it wrong; the ones that are taking short-cuts and taking risks with OUR HEALTH are the ones that are thriving. And the ones who are doing it for the right reason, who have our health and our disease as their first order of business, are having a hard time gaining traction.

And you want to know the truth? It’s our own damn fault.

It’s our own damn fault because we continue to buy (and promote) Cheerios, even though many celiacs continue to get sick.

It’s our own damn fault because we continue to buy Udis, when it’s obvious they don’t give two sh*ts about the quality of their products.

It’s our own damn fault because we continue to buy Omission, Daura and the other gluten-removed beers, even though there are amazing “gluten-FREE” beers on the market that are truly safe for us.

It’s our own damn fault because when the label says “manufactured in a shared facility”, we are still buying those products.

It’s our own damn fault because people are giddy over the possibility of a pill for celiac disease in the future so they can go back to eating normally, whatever that means.

It’s our own damn fault because we care more about eating what we “used to eat” instead of eating what we “should eat”.

We have an autoimmune disease folks. It ain’t fun. It can be absolutely brutal at times. But I implore all of you to consider being part of the solution and not part of the problem. Take care of your health. Take care of your fellow celiacs. And take care of the companies who do gluten-free right.

Pay it forward and may it come back to you ten-fold.

Thanks. And for those I’ve pissed off with this post, sorry…it comes from the heart.

#NoCureNoChoice

#NoCureNoChoice

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